this crazy ass list
a sign of desperation
or sign of progress?
In our desperation for Ike-a-saurus to gain weight, I've put together an impressive grocery list. If I wasn't so tired, I'd hit the store tonight. Alas, I might make it tomorrow. Though I'm sure I'll be just as tired then, too.
Here's the list. It kind of looks like I'm planning a diarrhea party:
salmon paste (or similar)
Gerber graduates yogurt melts
Other freeze-dried food (astronaut ice cream? enchiladas?)
Now that I think of it, I probably should have just taken a picture of the list, so that you could experience it's full WTF-ness.
It's no holds barred over here, folks. Take no prisoners. Balls to the wall. Once we managed to get Ike-a-saurus to eat a tiny tiny bit of solid food with only a few gags, his nurse and I were like, "QUICK. WE NEED MEXICAN CHICARRONES. FROM MEXICO. STAT."
High fat and strong flavor. That's what we're searching for. Apparently, we're also attempting to increase his sodium intake by 95,000%. Not sure what the plan is there. Having the trach, though, means strong flavors are more appealing. At least this is what I've heard from other mamas with trached kids. Because he's barely using his nose, if at all, his sense of smell and taste are probably impaired. Trached kids are known for loving really strong tastes and ignoring sweets. Most of the food we feed this little guy right now is of the sweet variety. Breast milk, Pediasure, and that's about it. He was rocking the Greek yogurt for a while, but he also threw it up a lot and now he won't touch the stuff.
I put two Goya stuffed green olives in his mesh feeder thing, and yowza. His eyes did a zoinks! doubletake and then he was chowing down. He still can't manage the olives on their own, though, he really has to have things that will dissolve in his mouth. Even things like Pirate's Booty or Cheerios are difficult for him because they break into so many pieces in his mouth. Plus, they lack the fat and calories he needs.
He's doing well with these Gerber yogurt things because they just get smaller and smaller in his mouth and he can easily pull them out to take a break if it's too much. I noticed they're freeze-dried, which is what makes me wonder if other freeze-dried food with shrink in your mouth, too? Some freeze-dried enchiladas for camping will have a good amount of fat in them. But again, the sodium is probably hideous.
I'm not trying to replace his regular caloric intake with solids yet. He's far from ready. But I love that he's interested in food and wants to take bites and try things. It's heart-breaking, though, when those bites end in severe gagging and throwing up. Not to mention the risk of him aspirating the vomit and coming down with aspiration pneumonia.
It's a tricky business, feeding this little guy. But if I can find some fattening snacks that will dissolve in his mouth, I am all over it. It will encourage him to keep being interested in food, and it will add to his daily caloric intake.
I'm going to play the Rocky theme song when I whip out the salmon paste. This may be an occasion for haikuoftheday's first vlog.