March for Ike!

two and a half pounds
tiniest toes in the world
now they kick my face

If you live in Austin, or near Austin, or feel like a road trip to Austin, I am setting up a team to march for Ike in the
May 8th March of Dimes March for Babies. It's a 3.2 mile walk to raise
money for the March of Dimes. As I know you all know by now, Isaac
wouldn't be with us today if it wasn't for technology developed and
researched by the March of Dimes. They save tiny little babies like Ike
everyday.

Please, please don't feel like you have to donate money to be
involved. I know money is tight. Boy do I know it. If you just want to
come walk with us, that would be AWESOME. You guys have done so much
for me and my family and Isaac. I think plopping him in his stroller
and walking with his posse would be amazing. Like almost unthinkable
amazing.

Here's the link for the Ike-a-saurus team.

You can just email me, too, if you're interested. My email is over in the sidebar over there.

Come on!
Saturday, May 8th!
8:30 am!
March for Ike and all the little babies like him!

IMG_0265
From this….

IMG_2092
To this…

Thanks to the March of Dimes – and to you.

The ONE day I go out

expecting phone call
but from a day earlier
am lost in space-time?

Yesterday I was supposed to get a call from the Fancy Surgeon's nurse practitioner from up in Cincinnati. She was going to call for a weight and respiratory status update so that we can move forward with possibly scheduling a trip up there this summer.

Of course the call never came.

I wasn't surprised, because the call NEVER comes. I always have to chase it down and make a nuisance of myself. And then when I finally get a return call several weeks later, it's always in the evening. This has been the pattern for nearly a year now.

Except that the call came today. I didn't have to chase it down. It came in at 9:30 this morning. WHILE I WAS OUT OF THE HOUSE.

DAMMIT!

I got a text from our nurse that someone from Cincy had just left a message. I was out at a coffee shop, ostensibly writing with a friend. Mostly I was bemoaning the fact that I have to write a synopsis for my work-in-progress, and waxing poetic about the awesomeness of snack cakes. In other words: I was out of the house – without children – and having (partially productive) fun.

So I get the text and I'm all, "SHIT!" Then I ruminate on how this is why people pay for voicemail or learn how to remote-access their answering machine. I also ruminate on how much it would cost to just forward all the house phone calls to my mobile phone while I'm out. When I'm done wasting time, I frantically try to call Cincy back, knowing this is a lost cause. I leave a message with a nurse, repeating my mobile number about 65 times, and begging her to make sure our nurse uses that number to call me back. Our nurse is out on rounds and I'm all SHIT again, because rounds = lost forever in the bowels of the hospital never to call back ever again.

Except she DID call back.

We were able to chat – me sweating and blotchy, pacing in front of the coffeshop in gale force winds – she calm and slightly rushed. I told her how he's gaining weight and seems to be doing well, she said the fancy surgeon is unlikely to commit to the surgery without a few days of tests and procedures first. This is not news to us – and in fact I'm shocked that there would be a remote enough chance to schedule the surgery WITHOUT the tests that she would bring up the non-possibility. Does that make sense? Ha.

Anyway, the gist of the conversation is that fingers, toes, ears, stomachs and eyeballs are crossed that we will be a go for evaluation and possibly, possibly the reconstructive surgery in July. IF Ike-a-saurus continues to gain weight. IF his lungs are healthy. IF he doesn't get any major illnesses. IF a meteor doesn't hit the house. IF we survive the upcoming zombie apocalypse.

Lots of IFs there.

Now I wait to hear if the fancy surgeon has space in his schedule in July.

And I confirm THEY HAVE MY FUCKING CELL PHONE NUMBER.

And my deep breaths commence in 3… 2… 1…

It’s 3 am and I’m hungry

a busy weekend
have escaped slightly unscathed
and with some flowers

Despite the fact that one kid ended up on oxygen and another kid ended up at urgent care with a potentially broken leg, the weekend was actually pretty nice. We planted flowers. The weather was beautiful. No ambulances made me cry. Netflix added season 5 of Weeds to the list of instant streaming shows. Good.

The one who was on oxygen is now sleeping without it, though I do think he's getting sick. It's too early to tell how sick, but hopefully this won't be a huge horrible thing.

The one who ended up at urgent care is sleeping soundly with an ace bandage on his knee, a bruise on his cheek, and a new respect for how fast you can really make your scooter go.

The one who helped with the flowers has snuck out of her bed and is sleeping in my bed.

I am not yet sleeping in my bed, but in an hour or so I will be.

There are a lot of things that are just inescapably fucked up about my life. But then, there are others that are not so bad, random Sunday night co-pays notwithstanding.

Tomorrow we are supposed to get a call from Cincinnati so that we can start the process of scheduling another trip up there. I fear our typical Sunday afternoons are going to get a little wonky in the future. But maybe after that, they'll be OK. Even better than OK – they'll be mundane. That's all a lady can wish for, isn't it? Sundays full of mundane mundanity? Maybe the call tomorrow will be the first step toward that goal.

Not tomorrow. Today. It's Monday already, isn't it?

It's 3 am. I'm really hungry.

Free wine! Free snacks! Talk about boobs!

Well, the talking about boobs part might be an oversell. But maybe not… you never know what hijinks will ensue down at the local milk bank.

Tomorrow night is the Grand Opening of the Mother's Milk Bank office here in Austin. They've moved to a fabulous new building and they're eager to show it off. Come on by from 5-7 tomorrow night for a glass of wine and a tour of the facilities. I am going to do my best to drop by. I might even wear fancy pants for the occasion. You can't beat a tour of milk processing facilities and fancy pants. I am completely serious about that.

Come by and say Hi!

The milk bank is on Medical Arts Street, Suite 12 (in Medical Arts Square). It's
right there at the corner of Dean Keeton and Medical Arts. Parking is
free and plentiful.

For more info about the milk bank, and the event, see my post from a few days ago

Yay milk bank! Yay parties! Yay fancy pants!

Just when I thought it was safe to go out…

blasted ambulance
wailing down the street, top speed
stops me in my tracks

For the first few months after Ike-a-saurus' trach-o-drama extravaganza last year I had a really hard time every time I saw an ambulance on the street. Especially the yellow and blue ones. I would have to pull the car over and hyperventilate and cry a little bit and then everything would be kind of OK (at least OK enough to resume driving). After a few months of that it got to where I could see an ambulance and be fine UNLESS it had its lights and siren on. Then – freak out. A few months after that, I was OK as long as someone else was in the car with me… all of this until the point where I could be in the car, see a wailing ambulance, and not lose my shit.

Time, acceptance, subsequent trips in ambulances – it seemed like all of these things combined to help calm me down.

Until today.

What makes today different? Beats me. Maybe it's all the health care talk, flashing me back to a dark time. Maybe it's the weather. Maybe it was a song on the radio. Maybe it was the actual, physical movement I had to take to take to pull the car over to let the ambulance go by. I don't know. But whatever it was set off a reaction that I haven't experienced in several months.

I think seeing all of the cars pull off to the side so that the ambulance could get through the traffic was the kicker. I immediately flashed back to being in the ambulance that first time with Ike. He was in the back and I had to sit in the front with the driver, watching the traffic scramble to get out of our way. Something about the cars pulling over today… well, it turned me into a big mess. That was at noon, and still, nearly 4 hours later I feel exhausted and shaky and cry-y.

Not really sure what the point of this post is, other than to say dammit, I thought all this mess was behind me.

Hmph.

My butt article!

In this month's Parents Magazine, read all about the seven stages of coming to terms with your new butt. Written by me, a looooong time ago.

Here it is! (In the actual magazine, the article is superimposed on a very attractive hiney.)

I would also like to say how hilarious it is to sign a contract with a national magazine that has the word BUTT on it in a big bold, all caps font.